摘要
对江苏扬州市1031例麻风病人及治愈者(其中95.8％有Ⅱ级以上畸残,治愈者占69.1％),就其需求进行了调查。患者对社会的需求,以畸残严重者较无畸残与较轻者为高;其优势需要,前者为提高生活水准,后者为改善畸残。78.5％的患者愿在家中生活,83.7％现症病人愿在院外治疗,愿在麻风院生活或治疗者占受调查者的11.0％、现症病人的16.3％、目前住院者的78.1％、独居者的19.7％,在家生活者的4.0％;畸残严重者较无畸残与较轻者,愿在麻风院生活或治疗的多;院外治疗期望以保密或门诊方式进行者分别为25.1％和11.2％。愿接受愈后随访者,期望以保密或门诊方式进行者分别为29.5％和33.2％。强调应将麻风畸残者列为“残疾人”,纳入社区康复和社会保障的范畴,努力解决其生活需要,文中就麻风康复医疗的重点对象,保留一些麻风院(村)的必要性,对院外病人治疗和随访的方式,尊重患者的保密意愿等进行了讨论。
The authores surveyed the demand of 1031 leprosy patients and cured cases in Yangzhou City , Jiangsu Province. Among them 95. 8% had disability Grade Ⅱor Ⅲ and 69. 1 % were cured. The demand on society in those with severe dosability is higher than in those with lesser damage. The main need is to increase the level of life in the former and to improve disability among the latter. 78 5% of them are willing to live in household and 83. 7% of active patients prefer to be treated at a clinic. Thosewho hope to live or be treated in a leprosy hospital are m 11% of the 1031 persons, in 16. 3% of active patients, in 78.1% of inpatients, in 19. 7% of those who lead a solitary life and in 4 % of those who live in households. This suggests that the persons with severer disability are more like to live in a hospital than those with slighter disability. Outpatients hope to be treated secretly in 25. 1 % and at a clinic in 11.2%. The cured hope to be secretly followed up in 29. 5% and to attend a clinic in 33. 2%.
