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恶性肿瘤临终患者善终认知的质性研究 被引量:37

Awareness of good death among terminally ill cancer patients:aqualitative study
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摘要 目的了解恶性肿瘤临终患者对生命走向终结的真实感受以及对善终的理解期望,为临终关怀护理提供依据。方法采用现象学研究与参与式观察相结合的方法,对16例恶性肿瘤患者就死亡和善终的话题进行深入访谈。结果恶性肿瘤临终患者对善终的认知包括3个主题13个副主题:生理方面为没有躯体疼痛、避免过度医疗、保持身体完整;心理方面为社交需求、保持尊严、拥有自主、心愿达成、后事交代、家庭和谐、精神慰藉;社会方面为经济状况、医疗资源、医疗照护。结论医护人员应深入了解恶性肿瘤患者的感受和身心需求,做到合理病情告知,适度医疗,减轻痛苦;同时加强医护人员善终相关知识与技能的培训,增加临终关怀病房和宁养机构,最大可能帮助患者实现善终。 Objective To study the feelings,understandings,and expectations of good death among terminally ill cancer patients,and to provide information for hospice care.Methods In-depth interview and participatory observation were conducted on 16 patients with malignant tumors to obtain their views on good death.Results Patients′perceptions of good death were categorized into physical,psychological,and socioeconomic domains.The codes contributing to explaining physical domain were "fairly painless", "avoidance of overtreatment",and " maintenance of body integrity".The codes contributing to explaining psychological domain included "social needs", "dignity", " autonomy", " gratification", " advance directives", "family harmony",and " spiritual comfort".The codes in socioeconomic domain were " economic status", " heathcare resources",and " health care".Conclusion Healthcare staff should thoroughly understand the feelings and needs of cancer patients to make reasonable disclosure,to provide appropriate medical treatment,and to relieve patient′s pain.Training regarding good death knowledge and practice should be provided for medical staff and hospice care institutions should be increased to help patients achieve good death.
出处 《护理学杂志》 CSCD 2016年第3期44-47,共4页 Journal of Nursing Science
基金 华中科技大学同济医学院附属同济医院青年基金资助项目(2014096)
关键词 恶性肿瘤 善终 心理体验 质性研究 malignant tumor good death psychological experience qualitative study
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