摘要
大数据是信息技术发展的新趋势,已被多个国家确立为重大技术战略。大数据技术也带来诸多新的伦理争议,加剧了现有的伦理问题,提出了法律和伦理管理中的规范需求。分析了大数据技术在临床医学领域引起的五方面伦理问题,包括传统个人数据保护手段遭遇的困境,大数据条件下个人知情同意程序难题,基因信息特殊性的争论,资源分配公平问题以及政府对大数据的监测管理等,并讨论其可能的解决思路。最后提出我国迫切需要对医疗大数据进行伦理管理,呼吁我国对医疗大数据立法并建立相关的规则体系。
As a new trend of information technology, big data is regarded as an important technology development strategy by many governments. However, besides aggravating the existing ethical problems, the big data has caused some new controversies calling for more ethical and legal regulations. This paper analyzed its ethical issues in five aspects, including the challenges to the protection of personal data, the procedures of informed consent in the era of big data, the arguments on specialty of genetic information, the justice of resource allocation and the government monitoring. It is imperative for China to give ethical governance with legislation and regulations on medical big data.
出处
《医学与哲学（A）》
北大核心
2016年第10期32-36,共5页
Medicine & Philosophy:Humanistic & Social Medicine Edition
基金
2015年北京市社会科学基金项目
项目编号:15ZXB008
关键词
大数据
临床医学
伦理
big data, clinical medicine, ethics
