摘要
先天性肛门直肠畸形是一种常见的消化道畸形。手术治疗虽然挽救了患儿生命,但是术后肛门失禁、狭窄和便秘等并发症给患儿的身心健康带来严重影响。父母作为主要照顾者,既承担照顾患儿的繁重任务,又面临着沉重的经济和精神负担,成为亟待关注的群体。本文就先天性肛门直肠畸形患儿父母生活质量和社会支持的研究进展进行综述,以期为改善该人群生活质量提供参考依据。
Congenital anorectal malformations are one of the most commonly observed congenital malformations of the digestive system. The surgical treatment has saved many children＇ s lives. But the postoperative complications, inclu- ding anal incontinence, stenosis, constipation, etc. caused serious damage to physical and mental health of children. Parents as primary caregivers, not only undertake heavy tasks of taking care of their children, but also bear economic and mental burden. Much more attention should be paid to them. This article summarizes the research progress on quality of life and social support among parents of children with anorectal malformations, which can provide evidence to improve the quality of life of the parents.
出处
《中华疾病控制杂志》
CAS
CSCD
北大核心
2017年第6期632-634,637,共4页
Chinese Journal of Disease Control & Prevention
基金
安徽高校人文社会科学研究重点项目(SK2017A0234)
关键词
先天畸形
直肠
生活质量
社会支持
Congenital abnormalities
Rectum
Quality of life
Social support
