摘要
目的:研究人工耳蜗患儿进入正常学校后听觉语言能力以及在校生活情况,评估手术对患儿及其家庭的长远综合助益。方法:参考听觉行为分级标准(CAP)、语言可懂度分级标准(SIR)及疾病家庭负担量表编制问卷表,问题涉及一般情况、听觉语言能力、在校情况、家庭情况4个方面,选择使用人工耳蜗至少2年并已进入正常学校学习的患儿作为研究对象,对其家长进行问卷随访,共收到50份有效问卷。以一般情况中性别、手术时年龄、父母学历、居住地、人工耳蜗使用时间、家长平时陪伴患儿时间为变量分组,比较各组在听觉语言能力和在校情况的差异,同时比较15项家庭情况指标在手术前后的差异。结果:各变量因素在听觉语言能力的组间比较中均差异无统计学意义(P>0.05);在校情况的比较中,以陪伴时间分组时,交友数量差异有统计学意义(P<0.05),其余各项因素的组间比较均差异无统计学意义(P>0.05);手术前后各项家庭情况的比较中,除经济负担、父母社交时间差异无统计学意义外(P>0.05),其余各项指标均差异有统计学意义(P<0.05),总体表现为术后较术前明显好转。结论:在各变量因素不同的情况下,经术后2年左右的康复,患儿均能够获得较好的听觉语言能力,可以适应在校生活、完成学业,但与同龄健听儿童相比在语言组织能力方面尚有欠缺;此外,父母精神压力随着患儿的康复及入学显著缓解,家庭生活正常化、家庭氛围良好,人工耳蜗不仅使患儿摆脱残疾,对其家庭也有非常明显的助益。
Objective：To study the auditory language ability of children with artificial cochlea after entering normal schools as well as the school life conditions and to evaluate the long-term comprehensive benefits of surgery on children along with their families.Method：The questionnaire was designed referring to the categories of auditory performance（CAP）,the speech intelligibility rating（SIR）,and family burden scale of diseases（FBS）,with the questions involving four aspects of the general conditions,the auditory language ability,the school life conditions and the family conditions.Altogether 50 families were participated.Children who had applied artificial cochlea for at least two years and studied in normal schools were selected as the studying objects.The follow-up questionnaire was conducted on the parents.The differences were compared in the auditory language ability and the school life conditions,grouped by gender,age at surgery,parentseducational level,residence,service time of artificial cochlea and parent-child time in general.Meanwhile,the differences of 15 family conditions were compared before and after surgery.Result：The variable factors were of no obvious statistical significance in the comparison among groups of the auditory language ability（P〈0.05）;In the comparison of the school life conditions,there were significant differences in the number of making friends when grouped by parent-child time（P〈0.05）,there wes no statistical significance in the comparison among groups of the remaining various factors（P〈0.05）;In the comparison of family conditions before and after surgery,the rest of the indexes were of significant differences（P〈0.05）,there was no significant differences in the economic burden and social time of parents（P〈0.05）.Family conditions improved evidently after surgery.Conclusion：Under the circumstances of different variable factors,after2 years of rehabilitation,children are able to acquire better auditory language ability,and adjust themselves to the school life,finishing their studies,still there is a deficiency in the aspect of organizational competence in comparison to age-matched children.In addition,with childrens recovery and attending schools,parentsmental stress is significantly reduced,family life returns to normal,and family atmosphere becomes harmonious.Not only can the artificial cochlea help rid children of disability,but also it can be of obvious benefits to their families.
出处
《临床耳鼻咽喉头颈外科杂志》
CAS
北大核心
2018年第1期42-47,共6页
Journal of Clinical Otorhinolaryngology Head And Neck Surgery
基金
江苏省科教强卫工程项目(No:ZDXKB2016015)
关键词
人工耳蜗植入
远期效果
家庭
cochlear implantation
long-term benefits
family
