摘要
目的 评价以家庭为中心的教育干预对儿童系统性红斑狼疮患者疾病相关知识、健康行为以及复诊依从性的影响.方法 2014年10月—2015年6月,便利选取北京市某三甲医院62例住院儿童系统性红斑狼疮患者,按时间先后分为对照组32例和观察组30例,观察组无患儿退出,对照组有2例患儿因出院后3个月未打通随访电话失访,共有60例患儿完成6个月的研究.观察组给予以家庭为中心的教育干预,对照组患儿接受病房常规治疗与护理.分别在干预前、出院后3个月、出院后6个月评估患儿疾病相关知识、健康行为;干预前和出院后6个月评估患儿复诊依从性.结果 观察组患儿出院后3个月、出院后6个月的知识掌握情况均优于对照组,差异有统计学意义（F值分别为4.513、5.412;P〈0.001）;出院后3个月,两组患儿的健康行为得分差异无统计学意义（F=1.948,P=0.057）,出院后6个月,干预组患儿的健康行为得分高于对照组,差异有统计学意义（F=3.399,P=0.001）;6个月内两组患儿的复诊依从性差异有统计学意义（χ2=6.667,P=0.021）.结论 以家庭为中心的教育干预可以快速提高系统性红斑狼疮患儿对疾病相关知识的掌握,并可以改善患儿的健康行为及复诊依从性提高.
Objective To evaluate the effectiveness of family-centered educational intervention on disease-related knowledge, health behavior and subsequent visit compliance among children with systemic lupus erythematosus （SLE）. Methods From October 2014 to June 2015, a total of 62 children with SLE from a class Ⅲ grade A hospital of Beijing were selected as the research object by convenient sampling method. They were divided into control group with 32 cases and observation group with 30 cases in chronological sequence. No children were withdrawn from the observation group, and 2 cases in the control group had not been followed up for 3 months after discharge. A total of 60 children had completed the study for 6 months. Children in the intervention group were given family-centered educational intervention, while children in the control group were given conventional treatment and nursing in ward. We assessed their disease-related knowledge and health behaviors before the intervention, 3 months after discharge, and 6 months after discharge, and evaluated their subsequent visit compliance before the intervention and 6 months after discharge. Results The disease-related knowledge level of children in intervention group was significantly higher than that of children in control group at 3 and 6 months after discharge （F=4.513, 5.412;P〈0.001）;For the health behavior, there was no significant difference between two groups of children at 3 months after discharge （F=1.948,P=0.057）, but at 6 months after discharge, the intervention group was higher than the control group （F=3.399,P=0.001）; There was a significant difference in the compliance of the two groups of children in the 6 months after discharge （χ^2=6.667,P=0.021）. Conclusions Family-centered educational intervention can rapidly improve the level of disease-related knowledge in children with systemic lupus erythematosus. It can improve children＇s health behavior and improve their subsequent visit compliance.
作者
连冬梅
孙静
宋红梅
李杨
Lian Dongmei;Sun Jing;Song Hongmei;Li Yang(Pediatrics Department, Chinese Academy of Medical Sciences ＆ Peking Union Medical College , Peking Union Medical College Hospital, Beijing 100730, China （Lian DM, Sun J, Song HM;School of Nursing Peking Union Medical College, Beijing 100043, China （Li Y)
出处
《中华现代护理杂志》
2018年第8期944-948,共5页
Chinese Journal of Modern Nursing
关键词
儿童
红斑狼疮
系统性
健康教育
以家庭为中心
健康行为
复诊依从性
Child
Lupus erythematosus
systemic
Health education
Family-centered
Health behavior
Subsequent visit compliance
