摘要
精准医学是一种以包括基因组学技术在内的组学技术为基础、以数据共享为前提、以全球变化为背景的新型现代医学,它的孕生与发展为维护整体的人类健康提供了物质基础、信息基础与现实基础。精准医学伦理构建需在分析个人健康和人类健康两者间有机联系与内在逻辑的基础上,形塑"人类健康命运共同体"的伦理理念,遵循保护隐私、共建共享、共责共治的伦理原则,以制定规范、健全培训、加强审查、完善立法为实现路径。本研究是关于精准医学伦理构建的总体方向与关键问题的一种宏观思考。
Precision medicine is a modern medicine based on omics technology including genomics,premised on data sharing,and grounded in the global change.Its birth and development provide the material basis,lay information foundation and develop reality for maintaining overall human health.The construction of precision medicine ethics should be based on analyzing the organic connections and internal logical relationships between individual health and humankind health,shaping the ethical conception of"a community with a shared healthy future for mankind",and obeying the ethical principles of protecting privacy,co-building and sharing precision medicine system,jointly shouldering the responsibility and governance.The paths to carry it out are as follows:to formulate ethical norms of precision medicine,to strengthen the ethical training for practitioners in the field of precision medicine,to promote ethical review and supervision of the entire process of precision medicine,and to accelerate the development and implementation of precision medicine laws and regulations.This research made a macro-consideration on the general direction and key issues of the construction of precision medicine ethics.
作者
陶应时
王国豫
TAO Ying-shi;WANG Guo-yu(School of Marxism,University of South China,Hengyang 421001,China;School of Philosophy/Center for Biomedical Ethics,Fudan University,Shanghai 200433,China)
出处
《科学学研究》
CSSCI
CSCD
北大核心
2020年第6期961-967,共7页
Studies in Science of Science
基金
国家重点研发计划“精准医学研究”重点专项(2017YFC0910100)
教育部人文社科青年基金项目(19YJC720026)
湖南省自然科学基金面上项目(2019JJ40247)。
关键词
精准医学
人类健康命运共同体
伦理理念
伦理原则
precision medicine
a community with a shared healthy future for mankind
ethical conception
ethical principle
