摘要
目的了解国内恶性肿瘤患者对患者报告结局的认知和参与意愿,以利患者报告结局理念在国内的推广。方法采用目的性抽样法于2018年10月-2019年8月在复旦大学附属肿瘤医院住院部选取20例恶性肿瘤住院患者,采用半结构性访谈收集资料,采用内容分析法分析资料。结果经编码提炼出3大主题共9个类属:(1)肯定价值:促进医患沟通、减少疑虑担忧、辅助医生决策。(2)认知局限:多视为口头报告、量表报告有负担、只报告异常和疗效。(3)愿意参与:大多愿意报告、报告的动力、报告的阻力。结论国内恶性肿瘤患者肯定患者报告结局的价值,较愿意参与其中,但对其认知存在局限性,报告过程存在较多影响因素。医护人员可通过强化患者对患者报告结局的价值认同和报告动力,减少报告阻力,来促进其参与;加强相关教育,打破认知局限,提高患者对患者报告结局的全面认识;开发更高质量的患者报告结局测量工具,以利患者报告结局在癌症标准化照护领域的应用和推广。
Objective To explore the views and participation intention of Chinese cancer patients on patient-reported outcomes(PROs).Methods Purposive sampling in Fudan University Shanghai Cancer Center finally led to 20 patients with diverse characteristics.Semi-structured individual qualitative interviews were conducted.Dialogues were audio recorded,transcribed,independently coded and analyzed for themes based on content analysis method.Results Three themes including totally ninesubthemes were extracted:(1)recognizeitsvalue:improve clinician-patient communication,reduce doubts and anxiety,assistmedicaldecisionmaking;(2)limited knowledge:usually regarded PROsas oral report,consider PROspaper questionnaires as a burden,only report abnormalities or curative effects;and(3)willing to participate in PROs:most are willing to report,the driving force of reporting,the resistance to report.Conclusions Cancer patients in China recognize the value of PROs and most are willing to participate.But they still have some knowledge limitations of PROs and can be influenced by many factors when participating.Medical staff can promote patients’participation by strengthening their value identification on PROs and their driving force,reduce the resistance factors,strengthen related education to break knowledge limitation of PROs.Better PROs scales and reporting approaches should be developed to promote the implication of PROs in cancer care.
作者
黄跃师
张晓菊
杨瑒
张雯
黄青梅
袁长蓉
Huang Yueshi;Zhang Xiaoju;Yang Yang;Zhang Wen;Huang Qingmei;Yuan Changrong(School of Nursing,Fudan University,Shanghai 200032;Affiliated Cancer Hospital of Fudan University,Shanghai 200032)
出处
《护士进修杂志》
2020年第20期1837-1842,共6页
Journal of Nurses Training
基金
国家自然科学基金面上项目资助(编号:71874032)
复旦大学复星护理科研基金资助(编号:FNF201812)。
关键词
恶性肿瘤
患者报告结局
质性研究
Cancer
Patient-reported outcomes
Qualitative research
