摘要
目的探究膀胱癌尿流改道腹壁造口患者家庭照顾者疾病获益感现状,为进一步制订患者家庭照顾者疾病获益感干预措施提供参考依据。方法采用描述性现象学研究法,以面对面半结构式访谈方式对13名膀胱癌尿流改道腹壁造口患者家庭照顾者进行访谈,用Colaizzi分析法整理资料。结果共归纳4个主题,主题1:学会积极面对生活,主要表现接受现实、珍惜拥有、坚定信念和希望;主题2:提升知行,主要表现疾病知识水平提升、造口护理操作能力提升;主题3:感知支持,主要表现家庭关系改善、感知医护人员的支持;主题4:照顾者角色的自我适应。结论膀胱癌尿流改道腹壁造口患者家庭照顾者在照护经历中体验到学会积极面对生活、感知支持等疾病获益感。医护人员应帮助膀胱癌尿液改道腹壁造口患者照顾者感受照顾患者的价值和意义,以提高其照顾的积极性,提高照护质量。
Objective To explore the perceived disease-related benefits of family caregivers of bladder cancer patients undergoing urinary diversion abdominal stoma from the phenomenological perspective so as to provide reference for making suitable intervention measures.The required data were treated with Colaizzi analysis.Method With the prescriptive phenomenological research method,semi-structured individual interview was performed among 13 family caregivers of bladder cancer patients who underwent urinary diversion and abdominal wall ostomy.Result Four themes were extracted:1.Learning to face life actively by accepting the reality,cherishing what is possessed and holding firm faith and hope;2.Improving knowledge and behavior by improving the disease-related knowledge and enhancing stoma nursing ability;3.Enhancing perception supports by bettering family relationship and perceiving the supports from nurses and doctors;4.Role adaptation.Conclusions The family members of patients with urinary diversion and abdominal wall stoma of bladder cancer can experience the perceived disease-related benefits in their nursing experience.The medical staff should help the caregivers in different clinical stages to feel the value and significance of caring for patients in early stage,improve the quality of care,and provide reference for clinical nursing research.
作者
马丹丹
乔够梅
任洁
程魏弟
贠妍卉
马玉婷
Ma Dandan;Qiao Goumei;Ren Jie;Cheng Weidi;Yun Yanhui;Ma Yuting(School of Nursing,Gansu University of Traditional Chinese Medicine;The 940th Hospital,PLA Joint Logistics Support Forces,Lanzhou,730000,China)
出处
《现代临床护理》
2020年第8期31-36,共6页
Modern Clinical Nursing
基金
甘肃省自然科学基金,项目编号为1506RJZA311。
关键词
膀胱癌
尿流改道腹壁造口
家庭照顾者
疾病获益感
现象学研究
bladder cancer
urinary diversion abdominal stoma
family caregiver
perceived disease-related benefit
phenomenological study
