摘要
目的采用德尔菲法研制适用于我国血友病患儿监护人的自我管理评价量表。方法经查阅文献、患儿监护人访谈和专家访谈,制定血友病患儿监护人自我管理评价量表草案。选择18名国内血友病管理和慢病管理相关领域的知名专家,进行德尔菲专家函询。分析函询专家的积极性、权威程度和意见协调程度,采用界值法筛选量表条目。对血友病患儿监护人进行问卷调查,评价量表的文化适应性和信效度。结果共进行两轮德尔菲专家函询,专家积极系数均为94.44%,专家权威程度分别为0.86±0.05,专家协调系数为0.11(χ^(2)=153.10,P<0.05)。制定的监护人自我管理评价量表包含知识、态度和行为3个维度,共53个条目。被调查患儿监护人均表示可读懂条目内容,完成量表需要时间为19.70±8.35min。量表总体的内部一致性(cronbach alpha)系数为0.893,内容效度为0.996,知识维度区分度为0.34,态度维度和行为维度的结构较好。结论本研究选择的函询专家积极系数、权威程度、专家意见的集中程度和协调系数均达到科学要求,研制的血友病患儿监护人自我管理评价量表信效度较好,且具有我国血友病患儿监护人社会文化适应性。
Objective To develop a hemophilia self-management scale for parents of Chinese children with hemophilia using Delphi method.Methods A domestic two-round Delphi study based on literature review,family and expert interviews was conducted.Eighteen experts with at least 2 years of clinical experience in hemophilia or chronic disease management were recruited.Participants rated the scales′indicators on a 5-point Likert scale for their importance in the evaluation of parents self-management ability.we concluded the experts feedback opinions and calculated relevant statistical index.A pilot experiment was conducted to adjust the expression of the items for easier to understand for the children′s parents.The scale′s reliability and validity was evaluated.Results In each round,seventeen Delphi questionnaires were answered,thus expert positive coefficients was 94.44%.The degree of expert authority were 0.86±0.05,while expert coordination coefficient were 0.11,which was statistic significant(P<0.05).By two rounds of consultation,the self-management scale includes 53 items.All of the participants could understand each item,the time required to complete the scale was 19.70±8.35min,The Cronbach Alpha coefficient of the scale was 0.893,s-CVI was 0.996,and the discrimination of knowledge dimension was 0.34.Conclusion The results of two rounds consultation were reliable,and the consistency of expert opinions was good.The scales can be used to evaluate the self-management ability of Chinese parents′whose children were sufferd from hemophilia.
作者
黄雪丽
陈玲玲
毕婷婷
邵帅
杨仁池
马新娟
Huang Xueli;Chen Lingling;Bi Tingting(Department of Nursing,State Key Laboratory of Experimental Hematology,National Clinical Research Center for Blood Diseases,Institute of Hematology&Blood Diseases Hospital,Chinese Academy of Medical Sciences&Peking Union Medical College,Tianjin 300020,China)
出处
《医学研究杂志》
2021年第7期77-82,共6页
Journal of Medical Research
基金
中央级公益性科研院所基本科研业务费资金资助项目(2018PT33021)
中国医学科学院北京协和医学院“双一流”学科建设项目。
关键词
血友病
德尔菲法
自我管理
儿童
量表
Hemophilia
Delphi method
Self-management
Children
Scale
