摘要
目的 探讨脑肿瘤患者和主要照顾者的家庭功能对双方经济毒性的预测效应,为临床干预提供参考。方法 便利抽取脑肿瘤患者及主要照顾者233对为研究对象,于诊断后3 d及诊断后6个月采用一般情况调查表、家庭亲密度和适应性量表、患者报告结局的经济毒性综合评分量表、照顾者报告结局的经济毒性综合评分量表进行调查;基于纵向的主-客体互倚模型分析脑肿瘤患者和主要照顾者的家庭功能对双方经济毒性的预测效应。结果 脑肿瘤患者家庭功能总分为65(55,71)分,主要照顾者总分为68(61,72)分;脑肿瘤患者经济毒性总分为23(18,27)分,主要照顾者总分为21(16,27)分。从主体效应来看,脑肿瘤患者及主要照顾者的家庭功能对其自身的经济毒性均具有显著预测作用(β=0.346、0.510,均P<0.05);从客体效应看,仅主要照顾者的家庭功能对患者的经济毒性有显著预测作用(β=0.372,P<0.05)。结论 脑肿瘤患者的经济毒性受到自身和主要照顾者所感知家庭功能的影响,医护人员应重视脑肿瘤患者家庭功能的评估,积极探索以家庭功能为焦点的干预方案。
Objective To explore the predictive effect of brain tumor patients and primary caregivers on their financial toxicity,and to provide evidence basis for clinical intervention.Methods A total of 233 pairs of brain tumor patients and their primary caregivers were conve-niently selected as the study subjects.The patients with brain tumor and their primary caregivers were investigated 3 days after diagnosis and 6 months after diagnosis using a general situation questionnaire,the Family Adaptability and Cohesion Evaluation Scale,Comprehensive Scores for Financial Toxicity based on the Patient-Reported Outcome Measures,and the Comprehensive Scores for Financial Toxicity based on the Caregiver-Reported Outcome Measures.Based on the longitudinal actor-partner interdependence model,the prediction effect of family functioning of brain tumor patients and primary caregivers on their financial toxicity was analyzed.Results The total score of family functioning of brain tumor patients was 65(55,71)points.The total score of primary caregivers was 68(61,72)points.The total score of financial toxicity of brain tumor patients was 23(18,27)points.The total score of primary caregivers was 21(16,27)points.From the perspective of actor effects,the family functioning of brain tumor patients and their primary caregivers had a significant predictive effect on their own financial toxicity(β=0.346 and 0.510,both P<0.05);From the perspective of partner effects,only the family functioning of the primary caregivers had a significant predictive effect on the financial toxicity of patients(β=0.372,P<0.05).Conclusion The financial toxicity of patients with brain tumor is affected by the perceived family functioning of themselves and their primary caregivers.It suggests that medical staff should pay attention to the evaluation of family functioning in brain tumor care and actively explore intervention programs focusing on family functioning.
作者
程玉婷
周东阳
张驰
Cheng Yuting;Zhou Dongyang;Zhang Chi(Neurosurgery of Henan Provincial People′s Hospital,Zhengzhou 450003,China)
出处
《护理学杂志》
CSCD
北大核心
2023年第22期15-19,共5页
Journal of Nursing Science
基金
2021年河南省医学科技公关计划联合共建项目(LHGJ20210021)。
关键词
脑肿瘤
主要照顾者
家庭功能
经济毒性
主-客体互倚模型
brain tumor
primary caregivers
family functioning
financial toxicity
actor-partner interdependence model
