Alzheimer’s disease (AD) and associated dementia patient numbers continue to increase globally with associated economic costs to healthcare systems. Of note is the increase in numbers in lower and middle-income count...Alzheimer’s disease (AD) and associated dementia patient numbers continue to increase globally with associated economic costs to healthcare systems. Of note is the increase in numbers in lower and middle-income countries (LMICs) including Sub-Saharan African (SSA) countries, which already face challenges with their health budgets from communicable and non-communicable diseases. Ghana, an SSA country, faces the problem of healthcare budgetary difficulties and the additional impact of AD as a consequence of increasing population strata of old aged persons (OAPs) due to the demographic transition effect. This article uses examples of known patients’ illness courses to give a perspective on the lived experience of patients with dementia (PWD) in Ghana, living amongst a populace with a culture of stigmatization of PWD, and a relatively fragile public mental health system (PMHS) for those with mental illness, including AD. The lived experience of AD patients is characterised by stigmatisation, discrimination, non-inclusiveness, diminished dignity and human rights abuses in the face of their mental disability, and eventually death. This article is an advocacy article giving voice to the voiceless and all persons suffering from AD and other dementias in Ghana, whilst pleading for a call to action from healthcare professionals and responsible state agencies.展开更多
Healthcare organizations rely on patients’feedback and experiences to evaluate their performance and services,thereby allowing such organizations to improve inadequate services and address any shortcomings.According ...Healthcare organizations rely on patients’feedback and experiences to evaluate their performance and services,thereby allowing such organizations to improve inadequate services and address any shortcomings.According to the literature,social networks and particularly Twitter are effective platforms for gathering public opinions.Moreover,recent studies have used natural language processing to measure sentiments in text segments collected from Twitter to capture public opinions about various sectors,including healthcare.The present study aimed to analyze Arabic Twitter-based patient experience sentiments and to introduce an Arabic patient experience corpus.The authors collected 12,400 tweets from Arabic patients discussing patient experiences related to healthcare organizations in Saudi Arabia from 1 January 2008 to 29 January 2022.The tweets were labeled according to sentiment(positive or negative)and sector(public or private),and thereby the Hospital Patient Experiences in Saudi Arabia(HoPE-SA)dataset was produced.A simple statistical analysis was conducted to examine differences in patient views of healthcare sectors.The authors trained five models to distinguish sentiments in tweets automatically with the following schemes:a transformer-based model fine-tuned with deep learning architecture and a transformer-based model fine-tuned with simple architecture,using two different transformer-based embeddings based on Bidirectional Encoder Representations from Transformers(BERT),Multi-dialect Arabic BERT(MAR-BERT),and multilingual BERT(mBERT),as well as a pretrained word2vec model with a support vector machine classifier.This is the first study to investigate the use of a bidirectional long short-term memory layer followed by a feedforward neural network for the fine-tuning of MARBERT.The deep-learning fine-tuned MARBERT-based model—the authors’best-performing model—achieved accuracy,micro-F1,and macro-F1 scores of 98.71%,98.73%,and 98.63%,respectively.展开更多
<b><span style="font-family:Verdana;">Background:</span></b><span style="font-family:Verdana;"> Patient’s acceptability of dental implant prostheses may be influenced...<b><span style="font-family:Verdana;">Background:</span></b><span style="font-family:Verdana;"> Patient’s acceptability of dental implant prostheses may be influenced the fact that a surgical procedure is involved. Adequate relevant information by the dental professionals pre-surgery, is therefore, paramount to alleviating the fear of surgery and contribute positively to patient’s ability to cope with post-surgical experience. This study, therefore, aimed at evaluating </span><span style="font-family:Verdana;">the postsurgical experience of the dental implant patients. As against what was</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">expected, and relate this with the information given pre surgery. </span><b><span style="font-family:Verdana;">Methodology:</span></b><span style="font-family:Verdana;"> Post treatment self-completed questionnaires were administered to consented </span><span style="font-family:Verdana;">patients that had dental implants placed between July 2017 and December 2019. The surgical procedure followed the standard protocol and </span><span style="font-family:Verdana;">data related to post-surgical experience were collected one week after the surgery</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">to obtain </span><span style="font-family:Verdana;">information on the level of pain/discomfort and amount of swelling experienced f</span><span style="font-family:Verdana;">ollowing surgery. The effect of the information on coping ability following surgery was also assessed. Data were analyzed using descriptive statistics (</span><span style="font-family:Verdana;">p</span><span style="font-family:Verdana;"> value ≤</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">0.05)</span><span style="font-family:Verdana;">.</span><span style="font-family:Verdana;"> </span><b><span style="font-family:Verdana;">Results:</span></b><span style="font-family:Verdana;"> Twenty-seven patients received 44 implants to replace 48 teeth. The mean age of the patients was 45</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">±</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">16.3</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">(SD) years. Teeth mostly replaced were the maxillary central incisors (39.6%). </span><span style="font-family:Verdana;">The majority of the patients 77.7% reported to experience less pain/discomfort </span><span style="font-family:Verdana;">than expected and 66.6% had less swelling than expected. While 29.6% felt they had excellent explanation of what to expect,</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">51.9% said they had good explanation.</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">The post-surgical experience between males and females was not statistically significant</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">(pain</span><span style="font-family:Verdana;">:</span><span style="font-family:Verdana;"> p</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">= 0.08, swelling</span><span style="font-family:Verdana;">:</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">p</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">= 0.64). However, the majority </span><span style="font-family:Verdana;">(8/12) that had good to excellent information preoperatively, had significa</span><span style="font-family:Verdana;">ntly </span><span style="font-family:Verdana;">less discomfort than expected. </span><b><span style="font-family:Verdana;">Conclusion: </span></b><span style="font-family:Verdana;">Positive, encouraging and satisfactor</span><span style="font-family:Verdana;">y experience of patients following implant surgical procedure is related to adequate and correct information pre-surgery.</span>展开更多
Background: Deep brain stimulation (DBS) is an established treatment for patients with advanced Parkinson’s disease (PD). Reports show continued patient satisfaction after surgery despite not maintaining clinical imp...Background: Deep brain stimulation (DBS) is an established treatment for patients with advanced Parkinson’s disease (PD). Reports show continued patient satisfaction after surgery despite not maintaining clinical improvement as measured by evolution scales. Objectives: The present study sought to explore expectations and level of satisfaction in patients after DBS surgery with a semi-structured questionnaire and subsequent correlation with functional scales, Quality of Life (QoL), and motor and non-motor symptoms. Methods: We performed descriptive statistics to represent demographic data, Wilcoxon rank tests to determine significant differences, and Spearman correlation between the applied scales. Results: We evaluated 20 patients with a history of DBS surgery. 45% were female, with a mean age of 55.7 ± 14.15 years, a mean disease duration of 13.42 ± 8.3 years, and a mean time after surgery of 3.18 ± 1.86 years. Patients reported surgery meeting expectations in 85.5% and continued satisfaction in 92%. These two variables showed a significant correlation. Conclusions: This sample of patients remained satisfied after DBS surgery, although we found no differences in motor and non-motor clinimetric scales. Further studies are needed to confirm the importance of assessing quality of life in patients with DBS.展开更多
BACKGROUND: Recent findings on emergency department (ED) patient experience surveys and concerns for the low response rates challenge the quality and reliability of the survey reports. We assessed the consistency of a...BACKGROUND: Recent findings on emergency department (ED) patient experience surveys and concerns for the low response rates challenge the quality and reliability of the survey reports. We assessed the consistency of an ED patient experience survey report and identifi ed the effects of patient demographics on ED patient experiences. METHODS: We conducted a prospective, cross-sectional study at a university-based ED from July to December 2017. We obtained ED patient experience scores from an institutional version (IS) survey and the Press Ganey Associates-distributed survey (PGA). We compared top box scores from the two reports using frequency analysis and performed multivariable logistic regressions to identify associations between IS patient demographics and scores. RESULTS: We obtained 289 PGA and 234 IS responses. The IS reported signifi cant, higher top box scores in doctor-specifi c patient questions compared to PGA (all four P-values < 0.01). Female, Christian and White patients were more likely to give top box scores (OR 3.07, OR 2.22 and OR 2.41, P-value < 0.05, respectively). CONCLUSION: We found significant differences in ED patient experience scores between the IS and PGA surveys. We recommend that healthcare providers consider patient demographic variables when interpreting ED experience score reports. Multiple survey techniques and distribution methods may be adopted to best capture ED patient experiences.展开更多
Background: Dilated cardiomyopathy is a refractory myocardial disease with a poor prognosis. Mrs. G experienced cardiopulmonary arrest during hospitalization. She constantly struggles with uncertainty and experiences ...Background: Dilated cardiomyopathy is a refractory myocardial disease with a poor prognosis. Mrs. G experienced cardiopulmonary arrest during hospitalization. She constantly struggles with uncertainty and experiences immense mental suffering from her symptoms, treatments, anxiety, and prognosis. This condition requires appropriate nursing care. Purpose: This study, which is based on Margaret Newman’s theory, aims to clarify the experience of illness of Mrs. G who has dilated cardiomyopathy. Methods: This involved interpretive and dialectical praxis research. The researcher and Mrs. G formed a partnership through discussion. Hermeneutical analysis was performed on the discussion content. Results: The experience of illness of Mrs. G consisted of 6 phases: “Looking back on the shock of having an illness and receiving medical treatment”, “Looking back on one’s life until present”, “Confusion resulting from uncertainty”, “Self-insight”, “Recognizing one’s true feelings of wanting to live”, and “Commitment and decision to live”. Mrs. G could find a new self and expand her consciousness. Conclusion: Mrs. G found meaning in coping with her illness and discovered the value of living while accepting her own destiny. She connected to her own life and became more prepared to live with hope. Thus, partnership in nursing care according to Newman’s theory can benefit patients with distress from dilated cardiomyopathy. This nursing support can improve patient outlook.展开更多
An evaluation scale of medical services quality was developed on the basis of "patients' experience". The questionnaires were developed by, among others, searching relevant literature, collecting well-es...An evaluation scale of medical services quality was developed on the basis of "patients' experience". The questionnaires were developed by, among others, searching relevant literature, collecting well-established assessment scales, measuring patients' experience and satisfaction, brain-storming, literature analysis. Delphi method was adopted for expert consultation. Scale items were screened and revised. The key indexes were converted. Field surveys were conducted for testing the reliability and validity of the scale. Our modified evaluation scale for measuring medical services quality based on "patients' experience" included 6 dimensions(tangibility, reliability, responsiveness, assurance, empathy and continuity), and 50 items. The novel scale based on "patients' experience" may better serve the purpose of assessing medical services quality.展开更多
Objective:Post-stroke urinary incontinence(UI)is one of the sequelae of stroke.This situation affects all aspects of the patient’s life–physically,psychologically,socially,and spiritually.This study aimed to investi...Objective:Post-stroke urinary incontinence(UI)is one of the sequelae of stroke.This situation affects all aspects of the patient’s life–physically,psychologically,socially,and spiritually.This study aimed to investigate the experience of patients’success in facing a post-stroke UI.Methods:A qualitative study using the Rapid Assessment Procedure(RAP)approach was used in this study.Informants were selected using purposive sampling.In-depth interviews with as many as 8 patients who had recovered from post-stroke UI and living in the greater area of Southeast Sulawesi(Indonesia)were conducted.In-depth interviews were also conducted with 8 caregivers and 2 nurses.Data were analyzed using a thematic analysis approach and interpretation of data was based on Humanbecoming theory and Self-care deficit theory of nursing.Results:Five successful things the patients experienced during post-stroke UI were identified.The five successes were as follows:they provided information to get to know and understand post-stroke UI,followed the procedures to overcome post-stroke UI,conducted self-control exercises and stayed motivated,performed daily activities independently according to ability,and made use of family suppor t and peers’attention.Conclusions:These findings indicated that persistence,belief,independence,and social support(family and peer)made patients to successfully face their post-stroke UI and improved their quality of life.These findings also became the basis for developing a poststroke UI management model based on Humanbecoming theory and Self-care deficit theory of nursing.展开更多
Background: Improving and sustaining the quality of nursing care is an intractable and persistent challenge. The patient experience of nursing care can give a different perspective on nursing quality and help clinical...Background: Improving and sustaining the quality of nursing care is an intractable and persistent challenge. The patient experience of nursing care can give a different perspective on nursing quality and help clinical nursing staff to direct quality improvement. Attempts to identify what is patient experience,the relationship with nursing care, and the application of patient experience in nursing quality improvement practice, in order to provide advices for constructing the quality standards and quality improvement strategies of nursing care.Methods: We conducted a literature review of original research publications. The database platforms Pubmed, Web of Science, China National Knowledge Infrastructure(CNKI) and Wanfang were searched from inception until end of August 2015. After screening retrieved articles, 40 sources(articles and organizational websites) were selected for analysis for the connotation, development and application of patient experience in nursing quality researches.Results: Our study identified several concepts about patient experience, roughly sorted out the development path of patient experience in worldwide and the application of patient experience in nursing quality improvement. It points out four precautions when applying patient experience in nursing quality improvement, which are differentiating patient satisfaction and patient experience, choosing appropriate data collection method and appropriate feedback time, and the last but the most important, applying theories to actual clinical practice.Conclusions: Professional indexes are important to maintain the care quality, but it cannot fully reflect quality of nursing care, which needs patient experience as the supplement. Nursing staffs need to make more efforts to enhance patient's nursing care experience, and apply the research results to clinical practice, and finally make patient-centered care come true. For future study, the evaluation system and management strategies about patient experience need to be developed to guide nursing quality improvement.展开更多
Aims and Objectives: To report a synthesis of the literature on the meaning of trust in the context of patients’ experiences of nursing. The review question was “How do patients describe the meaning of trust in the ...Aims and Objectives: To report a synthesis of the literature on the meaning of trust in the context of patients’ experiences of nursing. The review question was “How do patients describe the meaning of trust in the nursing relationship?” Background: Trust is essential in nursing as it has the potential to create opportunities for the human being to gain faith, hope and meaning in life as well as open up for new experiences. Trust is an interpersonal and essential element of all patient-nurse relationships and requires nurses to create a trusting relationship with the patients. Design: Systematic qualitative literature review. Methods: Systematic searches were conducted for the period January 2002 to December 2012, updated in January 2014. 20 papers were included. Results: Four categories emerged: Attitudes related to trust, indicating that trust is fundamental and existential;Experiences of trust, concerning how trust can be sensed;The patient-nurse relationship, revealing the qualities of the person who creates trust;and Where trust occurs, illuminating the contextual relevancies of trust. Conclusions: Patients’ experiences of trust in nursing are dependent on the nurses’ knowledge, level of commitment in the dialogue to creating and developing the relationship and contextual issues. Implications for nursing practice: Reflection on a trusting relationship with the patient is necessary for a deeper conceptual understanding of trust in nursing. Clinical nurse researchers nurse supervisors, managers and nurse educatorsshould discuss different areas of trust during nursing supervision and focus-group meetings as well as with nursing graduates to ensure that nurses develop knowledge of how to create a trusting patient-nurse relationship.展开更多
Objective: Nurses play important roles in caring for dying patients and their families. Difficulties students confronted when facing dying patients challenge the quality of nursing education. A better understanding of...Objective: Nurses play important roles in caring for dying patients and their families. Difficulties students confronted when facing dying patients challenge the quality of nursing education. A better understanding of students' experiences would enhance teachers' ability in helping students. This study aims to describe available evidence about nursing students' experiences when caring for dying patients and their families.Methods: A review of qualitative studies published between 2005 and 2017 was undertaken using the following databases: MEDLINE, CINAHL, ProQuest Central, ScienceDirect, and CNKI. The keywords included were nursing students, experience, care, end-of-life, and dying. Qualitative Assessment and Review Instrument was used to assess the quality of the studies by two independent reviewers. The data from the studies were analyzed by meta-synthesis.Results: Eighteen English and two Chinese studies were selected in this review. Four themes were emerged:(1) Students with dying patients: students did not have enough ability in symptoms control, comfort supply, and therapeutic communication for dying patients.(2) Students with the patients' families: students advocated more caring for patients' families.(3) Students with the surroundings: professional medical staffs, especially the nursing preceptors, were key roles in constructing a supporting system for students.(4) Students with themselves: nursing students underwent various negative feelings and adopted both negative and positive strategies to cope with such feelings;students experienced professional and personal development during the caring for dying patients.Conclusions: Nursing students' abilities in terminal symptom control, comfort supply, and therapeutic communication should be improved by more theoretic learning and simulation practice. The nursing preceptors were key roles in constructing a supporting system for students and helping them to control the negative emotions when facing dying patients.展开更多
Background and aim: People suffering from mental illness and their experiences of attitudes towards them are rarely investigated from the perspective of the individual. The aim was to gain an understanding of how a gr...Background and aim: People suffering from mental illness and their experiences of attitudes towards them are rarely investigated from the perspective of the individual. The aim was to gain an understanding of how a group of mental health patients experienced social relationships in personal settings as well as in society. Method: Open interviews with twenty-five mental health patients were conducted and analysed with a qualitative content analysis. Result: The essence of the result was that mental health patients’ experiences are still not taken enough into account, neither by mental health professionals nor by their social networks. This was underpinned by four core categories: Patients’ experience of deteriorated and reduced social contacts due to various degrees of acceptance and knowledge of people in general;service users reported on difficulties with social contacts in general, with family relationships, relationships with friends and workmates and with employers;reduced life opportunities were expressed, including violated self-image and poor coping competence and, ambivalent experiences of contact with the mental health services were reported. Conclusion and clinical implication: The present study contributes to the understanding of mental health patients’ experiences of professional services and of their social networks. This knowledge may strengthen the implications of patient-centred care essential for the outcome of the care.展开更多
Objective To investigate the patients experience in community health centers( CHCs) and explore its associated factors. Methods A cross-sectional study was conducted among 330 patients who visited CHCs in Shenzhen,Chi...Objective To investigate the patients experience in community health centers( CHCs) and explore its associated factors. Methods A cross-sectional study was conducted among 330 patients who visited CHCs in Shenzhen,China from January to March 2018. Dependent variable was patient experience. Key descriptive variables were age,gender,marital status,working status groups,visits frequency for the past 6 months,whether patients had signed a family doctor,whether trusted in family doctor,whether had chronic diseases. Results Questionnaires for 300 patients were assessed. In the univariate analysis,patients experience total score was significantly associated with marital status( P < 0. 1),working status groups( P < 0. 1),frequency of visit for the past 6 months( P < 0. 05),whether had signed a family doctor( P < 0. 05),whether trusted in family doctor( P < 0. 05),whether had chronic diseases( P < 0. 05). The multivariate analysis showed that unmarried patients( P = 0. 011,OR = 2. 96,95% CI: 1. 24-5. 43) and had signed a family doctor( P = 0. 023,OR = 0. 44,95% CI: 0. 22-0. 85) were more likely to get a higher score. Conclusions Findings of this study showed a medium-level score of patients experience in the community. Patients had a quite good experience and more interventions should be focused upon the influence factors to improve patients experience.展开更多
A patient-centered approach is used to build a therapeutic alliance between patients and the healthcare professionals in care process which should be supported by a good engagement of both parties. The study aimed to ...A patient-centered approach is used to build a therapeutic alliance between patients and the healthcare professionals in care process which should be supported by a good engagement of both parties. The study aimed to explore the gap between healthcare professionals and patients on patient engagement in hospital. It was a cross-sectional survey. 2774 doctors and nurses from Department of Medicine of public hospitals completed the self-administered questionnaire and 1042 patients discharged from corresponding wards completed the telephone interviews. Participants were interviewed using structural questionnaires. The Mann-Whitney test or Pearson’s chi-square test was used to analyze the agreement between health-care professionals and patients on the views and experiences of patient engagement. A difference was considered to be statistically significant when the p-value was <0.05. Although both groups valued the importance of patient engagement, there was a discrepancy on understanding, views and experiences. More healthcare professionals particularly in nursing were concerned about the possible negative impact of the engagement. The majority of healthcare professionals reported that they engaged well with patients, and perceived more difficulties than patients did. The findings highlighted the mutual understanding of patient engagement, involvement and challenges encountered by both groups in Department of Medicine, which was crucial in efforts to provide meaningful patient engagement in regards to jurisdictions, health system, specialty, discipline and background of patients. It provided insight that a collaborative strategy involving both healthcare professional and patients might be an alternative approach to improving patient engagement.展开更多
Introduction: Hospital inpatient care is provided to individuals who have a condition that requires them to stay in hospital. Patient experience is an important aspect of high-quality patient-centered care. Aim: With ...Introduction: Hospital inpatient care is provided to individuals who have a condition that requires them to stay in hospital. Patient experience is an important aspect of high-quality patient-centered care. Aim: With this pilot survey we aimed to obtain patient feedback on their experiences during their hospital stay, highlight areas of best practice and areas for improvement and provide a basis for a hospital-wide inpatient experience survey. Patients and Methods: Anonymous patient experience questionnaires were given to patients who were discharged from hospital during the month of May 2016. Patients were asked to answer 45 questions concerning their experience during hospital stay using the five-point Likert scale, and hand back the questionnaire before leaving the hospital. A suggestion box was provided for comments and suggestions for improvement. Results: Fifty-six questionnaires were handed out and 50 (from 27 males, 17 females and 6 patients who did not specify their gender) questionnaires were returned (89% response rate). Most of the responses fell within the “agree” to “strongly agree” range indicating a positive patient experience for most of the items addressed. Patients also provided useful comments and suggestions. Conclusion: Results of this survey indicate that patients generally had a positive experience during their hospital stay. This survey has revealed areas for improvement, and highlights the importance of patient experience when assessing a patient-centered service.展开更多
Improving health of Chinese people has become national strategy according to the Healthy China 2030.Patient experience evaluation examines health care service from perspective of patients;it is important for improving...Improving health of Chinese people has become national strategy according to the Healthy China 2030.Patient experience evaluation examines health care service from perspective of patients;it is important for improving health care quality.Applying artificial intelligence(AI)in patient experience is an innovative approach to assist continuous improvement of care quality of patient service.A nursing quality platform based on patient experience data which is empowered by AI technologies has been established in China for the purpose of surveillance and analysis of the quality of patient care.It contains data from nearly 1300 healthcare facilities,based on which portraits of nursing service qualities can be drawn.The patient experience big data platform has shown potentials for healthcare facilities to improve patient care quality.More efforts are needed to achieve the goal of enhancing people’s sense of health gain.展开更多
Patient and public involvement (PPI) has been recognized internationally. In England, NHS policies have increasingly emphasized the importance of patient-centered services, but limited evidence exists about the implem...Patient and public involvement (PPI) has been recognized internationally. In England, NHS policies have increasingly emphasized the importance of patient-centered services, but limited evidence exists about the implementation of PPI policies and strategies within organizations. Few studies have explored health professionals’ perceptions of PPI and comparatively little is known about the experience of senior nurses. A national consultation utilising three focus groups aimed to explore senior nurses’ PPI experience. Four Strategic Health Authorities (SHAs) and eleven Primary Care Trusts (PCTs) in England, with fifteen senior nurses with leadership roles and direct PPI experience, participated. Focus groups were digitally recorded and transcribed verbatim;anonymised transcripts were validated by participants and analysed with thematic analysis. Sixteen categories emerged within five sub-themes of PPI experience: provision of information and raising awareness (1 category), informal generic PPI-activities not perceived as PPI (3 categories), formal generic PPI (3 categories), involvement of specific groups (5 categories) and PPI in commissioning and strategy (4 categories). Findings provided new insights into senior nurses’ experiences and evidence that progress towards meaningful, effective PPI remains slow. Nurses performed PPI in a pragmatic sense, by virtue of the nature of nursing, but they did not recognise or label these activities as such. However, a plethora and variety of innovative activities formally recognised as patient and public involvement were undertaken, together with specific networks and groups’ involvement, and involvement linked to commissioning and strategy. Enhancing awareness of nurses through education, together with monitoring and feedback mechanisms could support the PPI implementation and effectiveness at organisations.展开更多
<strong>Aims and Objectives: </strong>To understand the lived experience and needs of patients with sickle cell disease during and two weeks after their crisis and identify the obstacles faced by patients ...<strong>Aims and Objectives: </strong>To understand the lived experience and needs of patients with sickle cell disease during and two weeks after their crisis and identify the obstacles faced by patients while they are in the hospital. <strong>Background:</strong> Although there is no specific data of a number of affected individuals with sickle cell disease in Oman based on their age, the majority of the Omani population are youth. This category of the population is either in their high school or working in the governmental or private sector in the country. When the most productive category of the population are getting frequently absent due to sickle cell crisis and complication of sickle cell crisis from their work, this leads to huge financial and human resource burden. <strong>Design:</strong> Phenomenology. <strong>Method:</strong> This qualitative descriptive research was conducted using face-to-face interviews based on an interview protocol. The interview protocol was developed by the authors based on a framework called domains of well-being. Twenty adult patients have been recruited for the interview after meeting inclusion criteria and were asked about their well-being and lived experience during sickle cell crisis. Authors used SRQR checklist in reporting the study. <strong>Results:</strong> Thirteen themes were identified related to patients’ lived experience and their well-being during sickle cell crisis. Patients reported physical, emotional, social, and spiritual alteration. Major themes that emerged are communication, medical team interpretation of genuine pain, Emotional disturbance during the crisis, What does this study contribute to the wider global clinical community? Nurses and doctors should use therapeutic communication when dealing with sickle cell patients. Nurses should establish rapport and trust with patients. In each health care setting, there should be a social worker to deal with patients with chronic illness social relationships between the patient, family and friends, post-discharge status, spiritual and Islamic activities, and physical abilities. <strong>Conclusion:</strong> Participants’ physical and psychological statuses were mostly affected. Moreover, participants experienced extreme emotional disturbance during a painful crisis. However, it was not well understood why participants experienced post sickle cell crisis symptoms which need to be further investigated. <strong>Relevance to Clinical Practice:</strong> Understanding the lived experience of sickle cell patients may help improve nursing and medical care provided to them and enhance better outcomes for patients. These findings made the nurses and physicians plan a strategy of treating sickle cell patients using a holistic approach.展开更多
<div style="text-align:justify;"> <strong>Background:</strong> Patients waiting for heart transplantation (HT) have complex physiological and psychosocial problems. Factors such as psycholo...<div style="text-align:justify;"> <strong>Background:</strong> Patients waiting for heart transplantation (HT) have complex physiological and psychosocial problems. Factors such as psychological state, behavior, social relationships, and cultural background of patients influence the HT process, such as causing psychotic disorder, difficult decision and close dependence. Care during the waiting period needs to be aimed at not only treating the symptoms but also the specific status<span "="">. <b>Purpose: </b>To describe the </span>physical and psychosocial experiences of the patients waiting for HT in one general hospital in the northern <span "="">part of China. <b>Methods: </b></span>A qualitative approach was used in this <span "="">study. Fifteen patients waiting for HT were selected based on purposive sampling, and semi-structured interviews were carried out. <b>Results: </b></span>In the analysis process, reported experiences of the participants were categorized into five main themes as follows: 1) feeling the impact;2) uncertainty about the future;3) difficult to make decisions;4) negative emotions and 5) request support. <b>Conclusion: </b>This study provides an in-depth description of patients waiting for HT who have<span "=""></span>experienced many physical, psychosocial, and familial problems due to disease and their cultural background. It found that Chinese patients have some special experiences due to their psychosocial background. This study suggests that nurses should focus on not only physical but also psychosocial problems of these patients, and provide understandings to develop more effective strategies to solve their problems. <b>Relevance to Clinical Practice: </b>This study focused on the special patients who are waiting for heart transplantation, and got the special results about the feelings and experiences. The results can help the doctors and nurses to help the patients pass the special period smoothly. </div>展开更多
<span style="font-family:Verdana;">Psychiatric day care plays an important role as transitional support after discharge in Japan. However, interruption rate of the day care treatment is high during the...<span style="font-family:Verdana;">Psychiatric day care plays an important role as transitional support after discharge in Japan. However, interruption rate of the day care treatment is high during the introductory period. The purpose of this study was to clarify the experiences of psychiatric day-care patients during the introductory period and find an approach to care. A qualitative study with thirteen patients at the </span><span style="font-family:Verdana;">introductory period was designed to explore participant’s experiences through </span><span style="font-family:Verdana;">semi-structured interviews. At first, patients were confused about their attitude because they paid attention to themselves, and consequently closed their </span><span style="font-family:Verdana;">involvement with others. However, through therapeutic day care activities, they </span><span style="font-family:Verdana;">attempted to adapt themselves and gradually turned their attention toward others and accumulated interpersonal experiences. As interactions with others became more frequent, they became conscious of themselves and others. </span><span style="font-family:Verdana;">Finally, while having worries about the future, they looked toward recovery and </span><span style="font-family:Verdana;">became aware that they were changing. Experiences of patients during the introductory period were essential to their recovery and gave meaning to their day care usage. Nurses should collaborate with patients to determine whether day care would serve to open a patient’s life to new possibilities.</span>展开更多
文摘Alzheimer’s disease (AD) and associated dementia patient numbers continue to increase globally with associated economic costs to healthcare systems. Of note is the increase in numbers in lower and middle-income countries (LMICs) including Sub-Saharan African (SSA) countries, which already face challenges with their health budgets from communicable and non-communicable diseases. Ghana, an SSA country, faces the problem of healthcare budgetary difficulties and the additional impact of AD as a consequence of increasing population strata of old aged persons (OAPs) due to the demographic transition effect. This article uses examples of known patients’ illness courses to give a perspective on the lived experience of patients with dementia (PWD) in Ghana, living amongst a populace with a culture of stigmatization of PWD, and a relatively fragile public mental health system (PMHS) for those with mental illness, including AD. The lived experience of AD patients is characterised by stigmatisation, discrimination, non-inclusiveness, diminished dignity and human rights abuses in the face of their mental disability, and eventually death. This article is an advocacy article giving voice to the voiceless and all persons suffering from AD and other dementias in Ghana, whilst pleading for a call to action from healthcare professionals and responsible state agencies.
文摘Healthcare organizations rely on patients’feedback and experiences to evaluate their performance and services,thereby allowing such organizations to improve inadequate services and address any shortcomings.According to the literature,social networks and particularly Twitter are effective platforms for gathering public opinions.Moreover,recent studies have used natural language processing to measure sentiments in text segments collected from Twitter to capture public opinions about various sectors,including healthcare.The present study aimed to analyze Arabic Twitter-based patient experience sentiments and to introduce an Arabic patient experience corpus.The authors collected 12,400 tweets from Arabic patients discussing patient experiences related to healthcare organizations in Saudi Arabia from 1 January 2008 to 29 January 2022.The tweets were labeled according to sentiment(positive or negative)and sector(public or private),and thereby the Hospital Patient Experiences in Saudi Arabia(HoPE-SA)dataset was produced.A simple statistical analysis was conducted to examine differences in patient views of healthcare sectors.The authors trained five models to distinguish sentiments in tweets automatically with the following schemes:a transformer-based model fine-tuned with deep learning architecture and a transformer-based model fine-tuned with simple architecture,using two different transformer-based embeddings based on Bidirectional Encoder Representations from Transformers(BERT),Multi-dialect Arabic BERT(MAR-BERT),and multilingual BERT(mBERT),as well as a pretrained word2vec model with a support vector machine classifier.This is the first study to investigate the use of a bidirectional long short-term memory layer followed by a feedforward neural network for the fine-tuning of MARBERT.The deep-learning fine-tuned MARBERT-based model—the authors’best-performing model—achieved accuracy,micro-F1,and macro-F1 scores of 98.71%,98.73%,and 98.63%,respectively.
文摘<b><span style="font-family:Verdana;">Background:</span></b><span style="font-family:Verdana;"> Patient’s acceptability of dental implant prostheses may be influenced the fact that a surgical procedure is involved. Adequate relevant information by the dental professionals pre-surgery, is therefore, paramount to alleviating the fear of surgery and contribute positively to patient’s ability to cope with post-surgical experience. This study, therefore, aimed at evaluating </span><span style="font-family:Verdana;">the postsurgical experience of the dental implant patients. As against what was</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">expected, and relate this with the information given pre surgery. </span><b><span style="font-family:Verdana;">Methodology:</span></b><span style="font-family:Verdana;"> Post treatment self-completed questionnaires were administered to consented </span><span style="font-family:Verdana;">patients that had dental implants placed between July 2017 and December 2019. The surgical procedure followed the standard protocol and </span><span style="font-family:Verdana;">data related to post-surgical experience were collected one week after the surgery</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">to obtain </span><span style="font-family:Verdana;">information on the level of pain/discomfort and amount of swelling experienced f</span><span style="font-family:Verdana;">ollowing surgery. The effect of the information on coping ability following surgery was also assessed. Data were analyzed using descriptive statistics (</span><span style="font-family:Verdana;">p</span><span style="font-family:Verdana;"> value ≤</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">0.05)</span><span style="font-family:Verdana;">.</span><span style="font-family:Verdana;"> </span><b><span style="font-family:Verdana;">Results:</span></b><span style="font-family:Verdana;"> Twenty-seven patients received 44 implants to replace 48 teeth. The mean age of the patients was 45</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">±</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">16.3</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">(SD) years. Teeth mostly replaced were the maxillary central incisors (39.6%). </span><span style="font-family:Verdana;">The majority of the patients 77.7% reported to experience less pain/discomfort </span><span style="font-family:Verdana;">than expected and 66.6% had less swelling than expected. While 29.6% felt they had excellent explanation of what to expect,</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">51.9% said they had good explanation.</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">The post-surgical experience between males and females was not statistically significant</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">(pain</span><span style="font-family:Verdana;">:</span><span style="font-family:Verdana;"> p</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">= 0.08, swelling</span><span style="font-family:Verdana;">:</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">p</span><span style="font-family:Verdana;"> </span><span style="font-family:Verdana;">= 0.64). However, the majority </span><span style="font-family:Verdana;">(8/12) that had good to excellent information preoperatively, had significa</span><span style="font-family:Verdana;">ntly </span><span style="font-family:Verdana;">less discomfort than expected. </span><b><span style="font-family:Verdana;">Conclusion: </span></b><span style="font-family:Verdana;">Positive, encouraging and satisfactor</span><span style="font-family:Verdana;">y experience of patients following implant surgical procedure is related to adequate and correct information pre-surgery.</span>
文摘Background: Deep brain stimulation (DBS) is an established treatment for patients with advanced Parkinson’s disease (PD). Reports show continued patient satisfaction after surgery despite not maintaining clinical improvement as measured by evolution scales. Objectives: The present study sought to explore expectations and level of satisfaction in patients after DBS surgery with a semi-structured questionnaire and subsequent correlation with functional scales, Quality of Life (QoL), and motor and non-motor symptoms. Methods: We performed descriptive statistics to represent demographic data, Wilcoxon rank tests to determine significant differences, and Spearman correlation between the applied scales. Results: We evaluated 20 patients with a history of DBS surgery. 45% were female, with a mean age of 55.7 ± 14.15 years, a mean disease duration of 13.42 ± 8.3 years, and a mean time after surgery of 3.18 ± 1.86 years. Patients reported surgery meeting expectations in 85.5% and continued satisfaction in 92%. These two variables showed a significant correlation. Conclusions: This sample of patients remained satisfied after DBS surgery, although we found no differences in motor and non-motor clinimetric scales. Further studies are needed to confirm the importance of assessing quality of life in patients with DBS.
基金supported by the Undergraduate Research Opportunities Program Faculty Advisory Board at the University of California,Irvinepartially by the National Center for Advancing Translational Sciences,National Institutes of Health(NIH),through the Biostatistics,Epidemiology and Research Design Unit [grant number:UL1 TR001414]
文摘BACKGROUND: Recent findings on emergency department (ED) patient experience surveys and concerns for the low response rates challenge the quality and reliability of the survey reports. We assessed the consistency of an ED patient experience survey report and identifi ed the effects of patient demographics on ED patient experiences. METHODS: We conducted a prospective, cross-sectional study at a university-based ED from July to December 2017. We obtained ED patient experience scores from an institutional version (IS) survey and the Press Ganey Associates-distributed survey (PGA). We compared top box scores from the two reports using frequency analysis and performed multivariable logistic regressions to identify associations between IS patient demographics and scores. RESULTS: We obtained 289 PGA and 234 IS responses. The IS reported signifi cant, higher top box scores in doctor-specifi c patient questions compared to PGA (all four P-values < 0.01). Female, Christian and White patients were more likely to give top box scores (OR 3.07, OR 2.22 and OR 2.41, P-value < 0.05, respectively). CONCLUSION: We found significant differences in ED patient experience scores between the IS and PGA surveys. We recommend that healthcare providers consider patient demographic variables when interpreting ED experience score reports. Multiple survey techniques and distribution methods may be adopted to best capture ED patient experiences.
文摘Background: Dilated cardiomyopathy is a refractory myocardial disease with a poor prognosis. Mrs. G experienced cardiopulmonary arrest during hospitalization. She constantly struggles with uncertainty and experiences immense mental suffering from her symptoms, treatments, anxiety, and prognosis. This condition requires appropriate nursing care. Purpose: This study, which is based on Margaret Newman’s theory, aims to clarify the experience of illness of Mrs. G who has dilated cardiomyopathy. Methods: This involved interpretive and dialectical praxis research. The researcher and Mrs. G formed a partnership through discussion. Hermeneutical analysis was performed on the discussion content. Results: The experience of illness of Mrs. G consisted of 6 phases: “Looking back on the shock of having an illness and receiving medical treatment”, “Looking back on one’s life until present”, “Confusion resulting from uncertainty”, “Self-insight”, “Recognizing one’s true feelings of wanting to live”, and “Commitment and decision to live”. Mrs. G could find a new self and expand her consciousness. Conclusion: Mrs. G found meaning in coping with her illness and discovered the value of living while accepting her own destiny. She connected to her own life and became more prepared to live with hope. Thus, partnership in nursing care according to Newman’s theory can benefit patients with distress from dilated cardiomyopathy. This nursing support can improve patient outlook.
文摘An evaluation scale of medical services quality was developed on the basis of "patients' experience". The questionnaires were developed by, among others, searching relevant literature, collecting well-established assessment scales, measuring patients' experience and satisfaction, brain-storming, literature analysis. Delphi method was adopted for expert consultation. Scale items were screened and revised. The key indexes were converted. Field surveys were conducted for testing the reliability and validity of the scale. Our modified evaluation scale for measuring medical services quality based on "patients' experience" included 6 dimensions(tangibility, reliability, responsiveness, assurance, empathy and continuity), and 50 items. The novel scale based on "patients' experience" may better serve the purpose of assessing medical services quality.
基金the Faculty of Nursing,Universitas Indonesia,Depok-Indonesia,for all valuable support。
文摘Objective:Post-stroke urinary incontinence(UI)is one of the sequelae of stroke.This situation affects all aspects of the patient’s life–physically,psychologically,socially,and spiritually.This study aimed to investigate the experience of patients’success in facing a post-stroke UI.Methods:A qualitative study using the Rapid Assessment Procedure(RAP)approach was used in this study.Informants were selected using purposive sampling.In-depth interviews with as many as 8 patients who had recovered from post-stroke UI and living in the greater area of Southeast Sulawesi(Indonesia)were conducted.In-depth interviews were also conducted with 8 caregivers and 2 nurses.Data were analyzed using a thematic analysis approach and interpretation of data was based on Humanbecoming theory and Self-care deficit theory of nursing.Results:Five successful things the patients experienced during post-stroke UI were identified.The five successes were as follows:they provided information to get to know and understand post-stroke UI,followed the procedures to overcome post-stroke UI,conducted self-control exercises and stayed motivated,performed daily activities independently according to ability,and made use of family suppor t and peers’attention.Conclusions:These findings indicated that persistence,belief,independence,and social support(family and peer)made patients to successfully face their post-stroke UI and improved their quality of life.These findings also became the basis for developing a poststroke UI management model based on Humanbecoming theory and Self-care deficit theory of nursing.
基金supported by General Project of the National Natural Science Foundation of China(No.71573097)
文摘Background: Improving and sustaining the quality of nursing care is an intractable and persistent challenge. The patient experience of nursing care can give a different perspective on nursing quality and help clinical nursing staff to direct quality improvement. Attempts to identify what is patient experience,the relationship with nursing care, and the application of patient experience in nursing quality improvement practice, in order to provide advices for constructing the quality standards and quality improvement strategies of nursing care.Methods: We conducted a literature review of original research publications. The database platforms Pubmed, Web of Science, China National Knowledge Infrastructure(CNKI) and Wanfang were searched from inception until end of August 2015. After screening retrieved articles, 40 sources(articles and organizational websites) were selected for analysis for the connotation, development and application of patient experience in nursing quality researches.Results: Our study identified several concepts about patient experience, roughly sorted out the development path of patient experience in worldwide and the application of patient experience in nursing quality improvement. It points out four precautions when applying patient experience in nursing quality improvement, which are differentiating patient satisfaction and patient experience, choosing appropriate data collection method and appropriate feedback time, and the last but the most important, applying theories to actual clinical practice.Conclusions: Professional indexes are important to maintain the care quality, but it cannot fully reflect quality of nursing care, which needs patient experience as the supplement. Nursing staffs need to make more efforts to enhance patient's nursing care experience, and apply the research results to clinical practice, and finally make patient-centered care come true. For future study, the evaluation system and management strategies about patient experience need to be developed to guide nursing quality improvement.
文摘Aims and Objectives: To report a synthesis of the literature on the meaning of trust in the context of patients’ experiences of nursing. The review question was “How do patients describe the meaning of trust in the nursing relationship?” Background: Trust is essential in nursing as it has the potential to create opportunities for the human being to gain faith, hope and meaning in life as well as open up for new experiences. Trust is an interpersonal and essential element of all patient-nurse relationships and requires nurses to create a trusting relationship with the patients. Design: Systematic qualitative literature review. Methods: Systematic searches were conducted for the period January 2002 to December 2012, updated in January 2014. 20 papers were included. Results: Four categories emerged: Attitudes related to trust, indicating that trust is fundamental and existential;Experiences of trust, concerning how trust can be sensed;The patient-nurse relationship, revealing the qualities of the person who creates trust;and Where trust occurs, illuminating the contextual relevancies of trust. Conclusions: Patients’ experiences of trust in nursing are dependent on the nurses’ knowledge, level of commitment in the dialogue to creating and developing the relationship and contextual issues. Implications for nursing practice: Reflection on a trusting relationship with the patient is necessary for a deeper conceptual understanding of trust in nursing. Clinical nurse researchers nurse supervisors, managers and nurse educatorsshould discuss different areas of trust during nursing supervision and focus-group meetings as well as with nursing graduates to ensure that nurses develop knowledge of how to create a trusting patient-nurse relationship.
基金supported by the Macao Science and Technology Development Fund(No.FDCT 276/2017/P)
文摘Objective: Nurses play important roles in caring for dying patients and their families. Difficulties students confronted when facing dying patients challenge the quality of nursing education. A better understanding of students' experiences would enhance teachers' ability in helping students. This study aims to describe available evidence about nursing students' experiences when caring for dying patients and their families.Methods: A review of qualitative studies published between 2005 and 2017 was undertaken using the following databases: MEDLINE, CINAHL, ProQuest Central, ScienceDirect, and CNKI. The keywords included were nursing students, experience, care, end-of-life, and dying. Qualitative Assessment and Review Instrument was used to assess the quality of the studies by two independent reviewers. The data from the studies were analyzed by meta-synthesis.Results: Eighteen English and two Chinese studies were selected in this review. Four themes were emerged:(1) Students with dying patients: students did not have enough ability in symptoms control, comfort supply, and therapeutic communication for dying patients.(2) Students with the patients' families: students advocated more caring for patients' families.(3) Students with the surroundings: professional medical staffs, especially the nursing preceptors, were key roles in constructing a supporting system for students.(4) Students with themselves: nursing students underwent various negative feelings and adopted both negative and positive strategies to cope with such feelings;students experienced professional and personal development during the caring for dying patients.Conclusions: Nursing students' abilities in terminal symptom control, comfort supply, and therapeutic communication should be improved by more theoretic learning and simulation practice. The nursing preceptors were key roles in constructing a supporting system for students and helping them to control the negative emotions when facing dying patients.
文摘Background and aim: People suffering from mental illness and their experiences of attitudes towards them are rarely investigated from the perspective of the individual. The aim was to gain an understanding of how a group of mental health patients experienced social relationships in personal settings as well as in society. Method: Open interviews with twenty-five mental health patients were conducted and analysed with a qualitative content analysis. Result: The essence of the result was that mental health patients’ experiences are still not taken enough into account, neither by mental health professionals nor by their social networks. This was underpinned by four core categories: Patients’ experience of deteriorated and reduced social contacts due to various degrees of acceptance and knowledge of people in general;service users reported on difficulties with social contacts in general, with family relationships, relationships with friends and workmates and with employers;reduced life opportunities were expressed, including violated self-image and poor coping competence and, ambivalent experiences of contact with the mental health services were reported. Conclusion and clinical implication: The present study contributes to the understanding of mental health patients’ experiences of professional services and of their social networks. This knowledge may strengthen the implications of patient-centred care essential for the outcome of the care.
基金The Guangdong Medical Scientific Research Fund(A2017375)Pingshan District Research Project(201710)
文摘Objective To investigate the patients experience in community health centers( CHCs) and explore its associated factors. Methods A cross-sectional study was conducted among 330 patients who visited CHCs in Shenzhen,China from January to March 2018. Dependent variable was patient experience. Key descriptive variables were age,gender,marital status,working status groups,visits frequency for the past 6 months,whether patients had signed a family doctor,whether trusted in family doctor,whether had chronic diseases. Results Questionnaires for 300 patients were assessed. In the univariate analysis,patients experience total score was significantly associated with marital status( P < 0. 1),working status groups( P < 0. 1),frequency of visit for the past 6 months( P < 0. 05),whether had signed a family doctor( P < 0. 05),whether trusted in family doctor( P < 0. 05),whether had chronic diseases( P < 0. 05). The multivariate analysis showed that unmarried patients( P = 0. 011,OR = 2. 96,95% CI: 1. 24-5. 43) and had signed a family doctor( P = 0. 023,OR = 0. 44,95% CI: 0. 22-0. 85) were more likely to get a higher score. Conclusions Findings of this study showed a medium-level score of patients experience in the community. Patients had a quite good experience and more interventions should be focused upon the influence factors to improve patients experience.
文摘A patient-centered approach is used to build a therapeutic alliance between patients and the healthcare professionals in care process which should be supported by a good engagement of both parties. The study aimed to explore the gap between healthcare professionals and patients on patient engagement in hospital. It was a cross-sectional survey. 2774 doctors and nurses from Department of Medicine of public hospitals completed the self-administered questionnaire and 1042 patients discharged from corresponding wards completed the telephone interviews. Participants were interviewed using structural questionnaires. The Mann-Whitney test or Pearson’s chi-square test was used to analyze the agreement between health-care professionals and patients on the views and experiences of patient engagement. A difference was considered to be statistically significant when the p-value was <0.05. Although both groups valued the importance of patient engagement, there was a discrepancy on understanding, views and experiences. More healthcare professionals particularly in nursing were concerned about the possible negative impact of the engagement. The majority of healthcare professionals reported that they engaged well with patients, and perceived more difficulties than patients did. The findings highlighted the mutual understanding of patient engagement, involvement and challenges encountered by both groups in Department of Medicine, which was crucial in efforts to provide meaningful patient engagement in regards to jurisdictions, health system, specialty, discipline and background of patients. It provided insight that a collaborative strategy involving both healthcare professional and patients might be an alternative approach to improving patient engagement.
文摘Introduction: Hospital inpatient care is provided to individuals who have a condition that requires them to stay in hospital. Patient experience is an important aspect of high-quality patient-centered care. Aim: With this pilot survey we aimed to obtain patient feedback on their experiences during their hospital stay, highlight areas of best practice and areas for improvement and provide a basis for a hospital-wide inpatient experience survey. Patients and Methods: Anonymous patient experience questionnaires were given to patients who were discharged from hospital during the month of May 2016. Patients were asked to answer 45 questions concerning their experience during hospital stay using the five-point Likert scale, and hand back the questionnaire before leaving the hospital. A suggestion box was provided for comments and suggestions for improvement. Results: Fifty-six questionnaires were handed out and 50 (from 27 males, 17 females and 6 patients who did not specify their gender) questionnaires were returned (89% response rate). Most of the responses fell within the “agree” to “strongly agree” range indicating a positive patient experience for most of the items addressed. Patients also provided useful comments and suggestions. Conclusion: Results of this survey indicate that patients generally had a positive experience during their hospital stay. This survey has revealed areas for improvement, and highlights the importance of patient experience when assessing a patient-centered service.
文摘Improving health of Chinese people has become national strategy according to the Healthy China 2030.Patient experience evaluation examines health care service from perspective of patients;it is important for improving health care quality.Applying artificial intelligence(AI)in patient experience is an innovative approach to assist continuous improvement of care quality of patient service.A nursing quality platform based on patient experience data which is empowered by AI technologies has been established in China for the purpose of surveillance and analysis of the quality of patient care.It contains data from nearly 1300 healthcare facilities,based on which portraits of nursing service qualities can be drawn.The patient experience big data platform has shown potentials for healthcare facilities to improve patient care quality.More efforts are needed to achieve the goal of enhancing people’s sense of health gain.
文摘Patient and public involvement (PPI) has been recognized internationally. In England, NHS policies have increasingly emphasized the importance of patient-centered services, but limited evidence exists about the implementation of PPI policies and strategies within organizations. Few studies have explored health professionals’ perceptions of PPI and comparatively little is known about the experience of senior nurses. A national consultation utilising three focus groups aimed to explore senior nurses’ PPI experience. Four Strategic Health Authorities (SHAs) and eleven Primary Care Trusts (PCTs) in England, with fifteen senior nurses with leadership roles and direct PPI experience, participated. Focus groups were digitally recorded and transcribed verbatim;anonymised transcripts were validated by participants and analysed with thematic analysis. Sixteen categories emerged within five sub-themes of PPI experience: provision of information and raising awareness (1 category), informal generic PPI-activities not perceived as PPI (3 categories), formal generic PPI (3 categories), involvement of specific groups (5 categories) and PPI in commissioning and strategy (4 categories). Findings provided new insights into senior nurses’ experiences and evidence that progress towards meaningful, effective PPI remains slow. Nurses performed PPI in a pragmatic sense, by virtue of the nature of nursing, but they did not recognise or label these activities as such. However, a plethora and variety of innovative activities formally recognised as patient and public involvement were undertaken, together with specific networks and groups’ involvement, and involvement linked to commissioning and strategy. Enhancing awareness of nurses through education, together with monitoring and feedback mechanisms could support the PPI implementation and effectiveness at organisations.
文摘<strong>Aims and Objectives: </strong>To understand the lived experience and needs of patients with sickle cell disease during and two weeks after their crisis and identify the obstacles faced by patients while they are in the hospital. <strong>Background:</strong> Although there is no specific data of a number of affected individuals with sickle cell disease in Oman based on their age, the majority of the Omani population are youth. This category of the population is either in their high school or working in the governmental or private sector in the country. When the most productive category of the population are getting frequently absent due to sickle cell crisis and complication of sickle cell crisis from their work, this leads to huge financial and human resource burden. <strong>Design:</strong> Phenomenology. <strong>Method:</strong> This qualitative descriptive research was conducted using face-to-face interviews based on an interview protocol. The interview protocol was developed by the authors based on a framework called domains of well-being. Twenty adult patients have been recruited for the interview after meeting inclusion criteria and were asked about their well-being and lived experience during sickle cell crisis. Authors used SRQR checklist in reporting the study. <strong>Results:</strong> Thirteen themes were identified related to patients’ lived experience and their well-being during sickle cell crisis. Patients reported physical, emotional, social, and spiritual alteration. Major themes that emerged are communication, medical team interpretation of genuine pain, Emotional disturbance during the crisis, What does this study contribute to the wider global clinical community? Nurses and doctors should use therapeutic communication when dealing with sickle cell patients. Nurses should establish rapport and trust with patients. In each health care setting, there should be a social worker to deal with patients with chronic illness social relationships between the patient, family and friends, post-discharge status, spiritual and Islamic activities, and physical abilities. <strong>Conclusion:</strong> Participants’ physical and psychological statuses were mostly affected. Moreover, participants experienced extreme emotional disturbance during a painful crisis. However, it was not well understood why participants experienced post sickle cell crisis symptoms which need to be further investigated. <strong>Relevance to Clinical Practice:</strong> Understanding the lived experience of sickle cell patients may help improve nursing and medical care provided to them and enhance better outcomes for patients. These findings made the nurses and physicians plan a strategy of treating sickle cell patients using a holistic approach.
文摘<div style="text-align:justify;"> <strong>Background:</strong> Patients waiting for heart transplantation (HT) have complex physiological and psychosocial problems. Factors such as psychological state, behavior, social relationships, and cultural background of patients influence the HT process, such as causing psychotic disorder, difficult decision and close dependence. Care during the waiting period needs to be aimed at not only treating the symptoms but also the specific status<span "="">. <b>Purpose: </b>To describe the </span>physical and psychosocial experiences of the patients waiting for HT in one general hospital in the northern <span "="">part of China. <b>Methods: </b></span>A qualitative approach was used in this <span "="">study. Fifteen patients waiting for HT were selected based on purposive sampling, and semi-structured interviews were carried out. <b>Results: </b></span>In the analysis process, reported experiences of the participants were categorized into five main themes as follows: 1) feeling the impact;2) uncertainty about the future;3) difficult to make decisions;4) negative emotions and 5) request support. <b>Conclusion: </b>This study provides an in-depth description of patients waiting for HT who have<span "=""></span>experienced many physical, psychosocial, and familial problems due to disease and their cultural background. It found that Chinese patients have some special experiences due to their psychosocial background. This study suggests that nurses should focus on not only physical but also psychosocial problems of these patients, and provide understandings to develop more effective strategies to solve their problems. <b>Relevance to Clinical Practice: </b>This study focused on the special patients who are waiting for heart transplantation, and got the special results about the feelings and experiences. The results can help the doctors and nurses to help the patients pass the special period smoothly. </div>
文摘<span style="font-family:Verdana;">Psychiatric day care plays an important role as transitional support after discharge in Japan. However, interruption rate of the day care treatment is high during the introductory period. The purpose of this study was to clarify the experiences of psychiatric day-care patients during the introductory period and find an approach to care. A qualitative study with thirteen patients at the </span><span style="font-family:Verdana;">introductory period was designed to explore participant’s experiences through </span><span style="font-family:Verdana;">semi-structured interviews. At first, patients were confused about their attitude because they paid attention to themselves, and consequently closed their </span><span style="font-family:Verdana;">involvement with others. However, through therapeutic day care activities, they </span><span style="font-family:Verdana;">attempted to adapt themselves and gradually turned their attention toward others and accumulated interpersonal experiences. As interactions with others became more frequent, they became conscious of themselves and others. </span><span style="font-family:Verdana;">Finally, while having worries about the future, they looked toward recovery and </span><span style="font-family:Verdana;">became aware that they were changing. Experiences of patients during the introductory period were essential to their recovery and gave meaning to their day care usage. Nurses should collaborate with patients to determine whether day care would serve to open a patient’s life to new possibilities.</span>
